The Alzheimer’s Research & Prevention Foundation (ARPF) is dedicated to the prevention of Alzheimer’s disease by funding research studies and providing educational outreach and memory screenings.
On the Cover:
• President’s Message
• “Kitty and the Doozy Pie”
• What Others Are Saying
• ARPF Outreach Update
• ARPF Research Update
• Donor List – Thank You!
• Give while you Shop
with Amazon Smile
Dharma Singh Khalsa, M.D.
Randal Brooks, MA, LPC
Carolyn S. Sechler, CPA
Kirti K. Khalsa
The Professional Image
Tryn Rose Seley
SCIENTIFIC ADVISORY COUNCIL
Ma Gloria Borras-Boneu, M.D.
GRD Health Institute – Barcelona, Spain
Karen E. Innes, MSPH, Ph.D.
Western Virginia University School of Public Health – Morgantown, WV
Sat Bir Singh Khalsa, Ph.D.
Assistant Professor of Medicine Harvard Medical School Brigham and Women’s Hospital – Boston, MA
Miia Kivipelto, M.D., Ph.D.
Aging Research Center and Alzheimer’s Disease Research Center Karolinska Institute – Stockholm, Sweden
Karen Koffler, M.D.
Medical Director, Canyon Ranch Miami Beach Miami Beach, FL
Helen Lavretsky, M.D., M.S.
Professor, Department of Psychiatry UCLA Semel Institute and Resnick Neuropsychiatric Hospital – Los Angeles, CA
Roberta A. Lee, M.D.
Vice Chair, Department of Integrative Medicine Beth Israel Medical Center – New York, NY
George Perry, Ph.D.
Dean and Professor, College of Sciences University of Texas at San Antonio – San Antonio, TX
Michelle Sierpina, Ph.D.
UTMB Osher Institute for Lifelong Learning University of Texas Medical Branch – Galveston, TX
Testimonial by Daryl Nardick, Ph.D., August 2014
In April of 2014 my mother died after suffering from progressive dementia for over four years. She was 87 years old. Up until her dementia surfaced, she was a dynamic, vital, curious and inordinately health-conscious soul.
When a loved one dies, it is often the custom to ask those who are kind enough to want to pay tribute, to donate to a favorite charity or nonprofit organization. Collectively, my family selected the Alzheimer’s Research and Prevention Foundation (ARPF) as our donation designee. We chose the Foundation because we were intent on supporting research into this most merciless, destructive disease. In truth, we actually knew very little about the foundation other than its commitment to the prevention of Alzheimer’s through research.
The irony of our decision is that ARPF is in complete alignment with my mother’s belief system toward health. From a very early age, my mother believed and embraced integrative health care starting with her yoga practice in her thirties, to her dietary preferences, to using the power of her mind for healing purposes during her retiring years. She was an individual who was truly well before her time. The blessing in selecting ARPF to be the recipient of the many kind gestures of support that were received in memory of my mother is that she herself would have approved of our selection.
Throughout the fall, we have had some great things going on. The biggest of them all was the annual AARP Convention in San Diego, September 4th – 6th.
We had one of the busiest booths there. Not only did we have great information to hand out, like our 4 Pillars of Alzheimer’s Prevention™ brochures and research information, but we provided more than 300 memory screenings to attendees throughout the 3-day conference.
What’s a “memory screening?” It consists of a 15-minute question-&-answer test. These questions are designed to test various aspects of your working memory, from recall to orientation, and give you a baseline memory score at this point in time. Doing a memory screening is a valuable tool in the prevention of Alzheimer’s tool belt. Many people are afraid of doing a screening, citing how many times they lose their keys in a day, but are relieved afterwards when the score is perfect, and he or she is doing the right things to protect the brain.
It was gratifying to talk with seniors from all walks of life about how they are preventing disease in their life, and humbling to hear their stories about how Alzheimer’s has touched their families. People like Stephanie Wong, whose mom took a memory screening, and also won one of our raffles (testimony below). When we hear stories like this, we know that we are doing exactly what we are supposed to be doing, bringing hope to countless people around the world by spreading the word that you can prevent Alzheimer’s disease.
7949 E. Acoma Drive, Suite 207
Scottsdale, AZ 85260
PS: You can check out more pictures on our Facebook page at https://www.facebook.com/PreventAD.
My mother and I attended the AARP Convention in San Diego, and my father brought to our attention that the Alzheimer’s booth was giving memory tests, so we definitely wanted to visit that booth, since my mother has been suffering from memory loss for about two years now and it has recently gotten worse.As we waited for my mother to take the test, everyone who worked at the booth made us feel very welcome, and were very warm and friendly. My mother took the memory test while I sat and observed. I was really impressed by the test, and the manner in which the test giver was giving the test.She was very positive and encouraging, and didn’t make my mother feel bad for giving wrong answers, but instead assured her that she could benefit from memory therapy if we asked her primary care physician for a referral, and showed him the test results. She was incredibly patient and we both appreciated the fact that the test giver didn’t rush us, and answered all our questions. I could see the relief in my mother’s face when she was talking to the test giver as my mother felt there was hope in sight in spite of all her frustrations with her memory loss.Out of all the booths at the AARP Convention, we found the Alzheimer’s booth the most informative as it related to something that she and I are very familiar with. To top it off, my mother “won” a jigsaw puzzle with two adorable dogs on it. I just have to encourage her to try to do the puzzle! Thanks for a great experience!
ARPF Research Update
ARPF recently had the opportunity to interview Dr. Wiesje van der Flier after her presentation at the International Alzheimer’s Conference in Copenhagen, Denmark, in July of 2014.
Dr. van der Flier is the Head of clinical research at the Alzheimer Center in the department of Neurology, and teaches Epidemiology and Biostatistics at the VU University Medical Center in Amsterdam, the Netherlands.
ARPF: What is your present research?
Dr. van der Flier: I am particularly interested in the early diagnosis of Alzheimer’s disease, and earliest brain changes that ultimately lead to Alzheimer’s disease and dementia. The current focus of our research are patients with Subjective Cognitive Decline (SCD).
ARPF: You talked about Subjective Cognitive Decline. How does SCD relate to what is called Age-Associated Memory Impairment?
Dr. van der Flier: Age-Associated Memory Impairment is a term that stems from approximately 20 years ago. I believe it encompasses both Subjective Cognitive Decline and objective cognitive decline. Since then, Mild Cognitive Impairment (MCI) was introduced, and we now move forward to Subjective Cognitive Decline (SCD) to better diagnose the disease.
ARPF: How would you define SCD for laypeople?
Dr. van der Flier: When a person perceives cognitive decline, but they have normal cognitive tests (there is no MCI, or dementia, or any neurological or psychiatric disorder).
ARPF: Does SCD progress?
Dr. van der Flier: SCD does not always progress. There is a lot of research presently going on to answer the question of which patients with SCD will progress to MCI. We have the beginnings of an answer, but that is in a research setting for now, so we cannot translate that yet to the clinical setting.
ARPF: Have you studied interventions to slow the progression?
Dr. van der Flier: No, we have not yet, because actually this group is only now attracting attention. But I do think this is an excellent population to study interventions for, such as lifestyle modifications, because these patients are worried, and they are very likely to be highly motivated to do something about their memory. So this is an excellent population to study.
ARPF: In your study, where and how did you recruit patients?
Dr. van der Flier: We perform our own studies, and they are all memory clinic-based. The patients come from the Amsterdam Dementia Cohort, University Medical Center in Amsterdam. Most of them come to our clinic because they are worried about their memory. We do a full diagnostic evaluation, and the results are normal (there is no neurodegenerative disease, with normal cognition). Actually, we reassure them and send them home, but we follow many of these patients on a yearly basis, and some of them do progress to Alzheimer’s disease. In some cases, the patients themselves were more sensitive to the (progression) than our cognitive tests, and these are really the patients we need to learn how to identify earlier and better.
We also know, from a clinical perspective, when the concentrated biomarkers of Amyloid Beta and Tau in the cerebrospinal fluid are normal in these patients, the chances of showing clinical progression are really very low, so they are very unlikely to develop dementia. From a clinical point of view, that is more important, because it is really reassuring.
ARPF: Tell us about your future research.
Dr. van der Flier: We just started the SCIENCe cohort (Subjective Cognitive Impairment) in Amsterdam. We intend to include 300 patients with Subjective Cognitive Decline, perform extensive baseline phenotyping investigations, measure their memory and cognition in every way we can, perform an MRI, amyloid scans, and hopefully also Tau scanning. Then we plan to follow them for as long as possible, preferably 20 years, because this is how long it takes for preclinical Alzheimer’s disease to develop.
Ed. Note: Although this is not ARPF-sponsored research, we are reporting about it because it fits perfectly with our 4 Pillars of Alzheimer’s Prevention to help maintain a healthy brain and a sharp memory.
|JULY – SEPTEMBER 2014||Individual Donations|
|Donations Made In Honor Of:Sanjay & Nikole
In Memory of her
Jamal GoreDaniel L. Casetta
Jonathan M. CasettaTeam Gibson
Maria GibsonLori Rosen-Giglio
Craig Orndorff’s Challenge
In Memory Of:
Paul D. Alexander
Emily BrodbeckMaureen Crean
Tom McDonnellRichard Harlan Danielson
Yvonne ParrotteRose DiDomenick
Russell O. Hamende
Bobbie Jean Wilcox Hare
Robert Gordon Hayes
Reverend Robert Jones
Mr. & Mrs. Keech
Grandma & Grandpa Madji
|Sam, my precious Dad
Maria GardeaNed Vaughn Scott, Jr.
Howard Tellepsen, Jr.Shirley Nan Thompson
Cindi TomlinJames Wells
Khalsa International, Inc
Puzzles To Remember, Inc
BT Americas & Global Impact
|Many Anonymous Donors
Calvin & Shirley Bardal
Anna M. Covell
Mary M. Eary
LeRoy & Mary Elfmann
Jena L. Harden
Joseph Hickson IV
Katherine J. Kerchner
Sat Kirpal Khalsa
Kelly S. Morgan
Gail Pavek Raynor
Daniel & Sheila
Anstyce Ruth Travis
Don’t Forget to Remember
The elephant, with its extraordinary memory is, for our organization, a symbol. One of our supporters thought about it and said, “Don’t forget to remember.” Remember how Alzheimer’s impacts all our lives. Give what you can to help further our ongoing work. And learn how you can become involved.
And… isn’t Cindy’s necklace lovely?
The tiny ring which allows it to dangle from the elastic bracelet works PERFECTLY on a chain – a silver one is ideal!
Support Alzheimer’s research and order yours today at www.alzheimersprevention.org (click the ‘store’ tab).
Give to ARPF while you Shop!
If you shop on Amazon.com, you can also easily raise research funds for Alzheimer’s prevention at no cost to you.Yes, the fantastic people at Amazon created this program that gives back .5% of your total purchase to your ARPF.It’s extremely easy and simple to set up:
1) Go to https://smile.amazon.com
2) Sign in with your email address and Amazon password.
3) You will be asked to “Select a Charitable Organization to Start Shopping.”
4) Go to “or pick your own charitable organization:” and type in Alzheimer’s Research and Prevention Foundation. Click on “search.”
5) Then “select” the Alzheimer’s Research and Prevention Foundation.
6) You will get a confirmation that we are now your charity of choice for future purchases.
7) Then every time you shop, you need to log in to https://smile.amazon.com to ensure your donation goes to ARPF.Sign up now and let’s keep each other smiling!
If you have any questions, please email us at email@example.com.